A qualitative study of the post-treatment experiences and support needs of survivors of lymphoma

L Monterosso; K Taylor; V Platt; E Lobb; M Krishnasamy; T Musiello; C Bulsara; K Stratton; D Joske

Journal article

A qualitative study of the post-treatment experiences and support needs of survivors of lymphoma

L Monterosso, K Taylor, V Platt, E Lobb, M Krishnasamy, T Musiello, C Bulsara, K Stratton, D Joske

European Journal of Oncology Nursing | ELSEVIER SCI LTD | Published : 2017

DOI: 10.1016/j.ejon.2017.03.002

Abstract

Purpose To explore the post-treatment experiences and preferences for follow-up support of lymphoma survivors. Methods Two focus groups were conducted with 17 participants to explore informational, psychological, emotional, social, practical and physical needs, 6–30 months post-treatment for lymphoma. Perceptions regarding a potential model of survivorship care were also elicited. Results Thematic content analysis revealed five key themes: Information; Loss and uncertainty; Family, support and post-treatment experience; Transition, connectivity and normalcy, and Person-centred post-treatment care. Participants described a sense of loss as they transitioned away from regular interaction with ..

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University of Melbourne Researchers

Meinir Krishnasamy Author

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Funding Acknowledgements

The authors disclose the study was supported by funding from the Cancer and Palliative Care Research and Evaluation Unit, Western Australian Cancer and Palliative Care Network.